Amber Rose

Jun. 3rd, 2010 01:25 am
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We made arrangements with a local funeral home, and checked with the state. The state has a program to assist with burial costs. This is a good thing, as they aren't cheap. The funeral home is a family run business, and they seem to be sympathetic to our situation. Between everything (thanks to those that could and did) we have enough to cover things. The funeral home is hoping to have things taken care of tomorrow, if they can get the paperwork in line for us.


I miss you so much, little one.

I am glad that time eases such things. ./sigh
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Amber's lung collapsed last night/early today. They couldn't get it back up. They called us to the hospital. We held her when they shut her vent down. My daughter's dead. (at 3:50PM EST) She had her mother's eyes.

*edit for time clarification*
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Amber's doing okay, today. Her white blood count is up slightly, so they are assuming she's got an infection until they can verify it (3 day culture), which means antibiotics switchout. Jaundice is still up, but not anything to worry about, yet. They got the PIC line in, and her weight is up to 360g. Head ultrasound schd. for tomorrow to check her brain.

They also mentioned that removing the Umbilical Cord IV can sometimes help with increasing pooping, since it can divert some blood flow away from the intestines. They are going to see if taking that out helps with her solids output, before subjecting her to Baby Enema.

I had hoped to go see her, today, but with everything to do it will probably be tomorrow.

The nurse said the weight gain did NOT look like just water-weight, so this is a good thing.

More Amber

May. 26th, 2010 06:36 pm
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Checked in on Amber. She's had another good day. They repositioned her air tube, and she's now off the Oxy treatment (on Room Air.) Her OxySat is 98%. Her sugars are good, her lungs XRay came back good, her blood gases are good, CvCs good. She's off photo therapy, for now. She's getting treatment for the other type of Jaundice (meds) and a suppository for stooling. Also, her belly grew, and they are cutting back on food for a day to make sure it's just due to milk. They won't weigh her until tonight, so her last weight is still 310. Also, her eyes are opening more often, now. She's on a sedative drip to keep her from ripping off her leads, but she's still a bit feisty.

More Amber

May. 25th, 2010 12:38 pm
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She made it through the first week, yay!

We went in and saw her today, after Omi had her staples removed.
She's doing okay, today.
Her weight is back up to 330g, again.
She's responding well to the milk, so they are going to 4 times a day with it.
Her vent settings are about the same, today.
Oxy went up to 30% last night, back down to 20%ish today.
Still a day by day thing, but as I understand it her chances of survival just went up notably.

./cheers on Baby Amber Rose

Prayers/Goodthoughts/Etc thanked for, and still welcomed.
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Called today to check up on Amber. She's 5 days old now. They said her blood-work came back good, again, and that they are actually going to start feeding her! (1cc of milk every 12 hours) Go, kiddo!

All prayers, good-thoughts, well-wishing, energy, etc. are quite welcome, and thanked for.

More Amber

May. 21st, 2010 04:19 pm
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Saw my daughter, again, today.
She's doing okay, overall.

She's lost most of the weight she gained, though she's not down below her birthweight.
(This was something we were told would probably happen, micro-premie weight bounces a lot.)
Her sodium was a little off, so they had to address that.
Her sugars are only being addressed as-needed, now, so that's good.
They are trying to scale back her BP meds, to see if she can now sustain a reasonable BP on her own.
She's continuing to pee, so her organs are working.
Her temp is being kept up easier, the incubator is only set to 99 instead of 104.
They've done two or three brain scans, so far, and though I don't have the radiologist take on it, the doctors who watched the techs do the scan said they didn't see any brain bleeds. (very, very good news)

She made it past the three day milestone, next stop is the one week milestone.

The doctor is trying to make sure we understand that it's still a touch and go thing. At this stage, if something goes wrong it's going to be (likely) a quick thing. We know this, but we're hoping that all the good signs and such will hold out for us. We live about 45 minutes from the hospital, so if they call with bad news we will likely try and break the land-speed record for back-road driving. I hope to not have to try that particular trick, of course.. My daughter seems to be a betting girl, and so far she's gotten along good with the odds. I hope she can keep it up.

They still have her being sedated, lightly, otherwise she gets annoyed by the medical equipment and tries to remove it.

I promised her that if she gets through this, we will take her to Disneyland/world, and the surrounding Parks.
Omi promised that she's be spoiled (though, not rotten) if she makes it though.

As always, thoughts/prayers are appreciated, and thanked for.
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There have been some people asking how they can help out regarding Amber.
Some people have come up with some things to do, others are asking for a donation link.
Here is said link. Any donations will go toward (a) covering the costs of my staying at the hospital until the next milestone (3 days) has been passed, (b) covering the cost of all the rest of the baby stuff that we didn't have yet because we were spacing out purchases to make them more affordable, and (c) covering additional costs (the list of possible complications that can arise from this is.. mindblowingly staggering.)







[ edited for clarity. ]
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So, we had the anatomy ultrasound, today. Baby is fine, and we have many pictures to scan.. Possible change in due date to 09/09, but we shall see. The tech/doc said she's not 100% sure, but she's pretty confident that baby is a She. So, going off that, we whittled at the names list we had. Amber Rose Meredith Adkins. Naomi insisted we include Meredith so that there would be sufficient syllables to build up a good head of steam. :P
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As promised, here are the Ultrasound pictures. The smaller one was from a bed-side, portable unit. The larger four are from a full-sized Ultrasound unit.

Baby Pictures Below )

Approximate development age of 14.5 weeks, and weight of 4 oz. :)
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In my previous post, I had mentioned Omi's blood pressure had been taken at the Health Department, and found high. I neglected to mention the specifics of that, though. The measure was taken at 160/110. Later that day, at Wal-Mart, she used the BP machine and it gave her a reading of 156/112 (I think.)

After we got back from Wal-Mart, Wednesday evening, Omi took a nap. She then did some research online, and saw why the doctor/nurse had been upset. We discussed it for a bit, and she decided she wanted to just go ahead and go to the ER. (No doctor, yet, so not very likely to get seen for "anything" -soon.-) So, we grabbed our sweaters (it was Midnight-ish) and headed in to town, to the ER.

So, we got to the ER, and she put down why she was there, and that she was pregnant. Within five minutes, we were sitting with someone explaining why were were there. (This discussion, including previous medical details and history, suspisions, and casting our star chart, was repeated at least half a dozen times while we were there.) They started taking her BP, had to switch cuffs (failed the first three times, lol) and it rang up at a whopping 185/120. This made the medical staff gibber slightly, and slapped Omi in to a bed, drew eight vials of blood, took a urine sample, and attached a BP cuff to auto-test every five minutes.. for five hours. After hour three they gave Omi a shot of a BP med that's pregnancy-friendly. This took her BP down to 117/78.. for about a hour. It then went back up to about 145/95. After they injected her, they brought in a doppler mic to try and hear the baby's heart. They failed at this for about 15 minutes, then brought in an ultrasound device.. and showed us the first picture of the baby. Weighing in at 4 ounces, and about 15 weeks development, baby is still young enough to not be able to sex. Omi had a crying jag, and the nurse was able to clock 161 heartbeats per minute. (slightly high, but acceptable - they said standard range for beats is 100-160)

The hospital decided to keep her for 24 hour observation, and stuck us in a nice room. With one bed. Yay for me, though, they brought me a pull-out chair. After a couple hours, we went for a full-blown ultrasound (the other one was a bedside-unit, not quite as precise) and then we slept for a while. Over the next 24 hours, the hospital ran a large battery of tests on Omi. The staff was somewhat confused because there were no other symptoms, just high BP. (no feet swelling, no kidney issues, etc) The only test that came out positive was the screening for Gestational Diabetes - they are going to require her to take the longer test that calls for fasting sometime next week.

Anyways, this morning (after they finished collecting test samples) they had a social worker come in and ask us a few questions. Due to our financial situation, we should (or more to the point, Omi and Baby) qualify for Pregnancy-Medicaid. So, she gave us a list of paperwork to send her and told us it would backdate the cost to the first of this month, and will cover them until the end of the second month after delivery. This was the only real time someone brought up the cost of this.

So, with that taken care of, we thanked the staff, got in the car, and drove away.

We have an Rx for Omi for her BP, we have paperwork for Medicaid, we have paperwork for WiC to fill out, and we have two appointments we need to make, on top of the basic DR appointment. One for the Hypertension Clinic, and one for the High-Risk Pregnancy Clinic. Yes, the BP being that far up automatically makes this a high risk pregnancy.

An amusing side note, the baby seems to be very, very active. Little 4oz tadpole doing summersaults in the belly.

The cafeteria food was good quality, but most of their pre-packaged foods had HFCS in it, which was annoying. Glad to be out of there.

(pictures will be scanned in soon)
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We got an official "you're pregnant" slip and will be setting up the next doctor's appointment, tomorrow.
First official Due date is August 30, we both expect early September.
Ultrasound should be sometime this month, from what I understand.
We got about three inches of paperwork and pamphlets, about 50% directed at teen-pregnancies, handed to us.
Doc was a bit concerned about Omi's blood pressure being up, so we'll make sure and mention that as well.
Good trip, overall.

:)

We're in to the second Trimester, now.
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Found in a couple other journals, here on LJ.

(Shatterstripes LJ)Livejournal is using sneaky Javascript to pass a lot of e-commerce links on everyone's journals through a mysterious tracking site, and forcing them to open in a new window to boot.

and

(Caffeinepuppy LJ)Fortunately, there is a way to opt out..

These articles were pointed out to me by my loverly wife, who found out about this through a friend in a community that reads someone who reads them.. How many degrees of separation is that?
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We're looking at sewing some simple draw-string skirts for Omi, as her skirts are starting to be a bit problematic (getting tighter as the pregnancy progresses.) Anyone got a pattern they could point us towards? I can't seem to find my simple skirt pattern..

WTF?

Feb. 23rd, 2010 11:54 pm
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Colorado School Shooting

Two children injured, through surgery, expected to recover. None dead. From reports, guy just walked up to the two kids and asked if they went to school there. He shot them when they said they did. Motive unknown, as of yet. Gunner in custody. WTF?

Internetz

Jan. 4th, 2010 02:31 pm
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I've got a call in to Verizon, and they are sending a new modem. Our internet connection keeps loosing itself, and it's taking longer and longer to find itself back, each time. It's dropped out five times, today, so far. So, if we're a bit quiet over the next few days, it's because of this. :)

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